In Sickness

I made a note for the idea behind this poem when my wife was dying from refeeding syndrome in 2018. At the time, I was way too close to the matter to even think about writing a poem like this. But, now some time has passed, and my wife survived to regain her health again.

In Sickness

If I knew then what now I know,
  would I still take the vows?
Would I still pledge my life to you
    beneath the cherry boughs?

      Your arms are like a skeleton;
        your face is gaunt and frail.
      A bag is taped against your side
          collecting what you spill.

Would I still bear the looming loss
  if somehow then I knew
what “sickness” meant so long ago
    within that heavy vow?

      You vomit everything you eat;
        your heart rate will not slow.
      Each day it seems you’re nearer yet
          the place we all must go.

The truth is, I have no idea—
  The man I was back then
might well have taken every step
    to circumvent this end.

      The doctors at the hospital—
        They have no reason why
      you will not stabilize and heal—
          I fight back bitter sighs.

But he is not the man that’s here.
  For all my fear and grief,
I will not turn away from you
    so long as you draw breath.

Turns out there is a fairly high percentage of cancer patients who die from refeeding syndrome—a metabolic cascade failure that ends in death—especially with large stage 3 tumors. This is because the tumor takes all the body’s nutrients, essentially starving the patient. When the tumor is gone, the effect can be just like the prisoner of war returning to a normal diet for the first time after rescue, which can trigger the syndrome.

Unfortunately, it seems most doctors don’t know to look for this. It was pure chance that someone on my wife’s medical team realized what was happening and started the protocol for saving her life—parenteral nutrition. This means being fed intravenously until the body remembers how to correctly metabolize food through the digestive system on its own.

The Outline

Since the mid 2000s, I’ve more or less tried to avoid using poetry to process traumas and strong emotions. This decision was inspired by a friend and mentor who expressed open disdain for such poetry. I suppose, since I was still working through issues of neglect and abandonment from my childhood, I hoped this would his win his approval. But that’s another story.

I think that—slowly, dimly—I’m beginning to realize that for me using poetry to process personal traumas, experiences, and strong emotions is not only essential to my process of working through the deep stuff and eventually moving forward, but to my overall inspiration to produce new material. Now, where I’ve actively tried to resist urges to use poetry to process my traumas, I’m working to move in the other direction.

The Outline

All around
                                   a storm.

                    Clouds
                              swirling.

               Winds
                          howling.

     Leaves
                    blowing.

          Walls
               creaking.
 

Through the window
          deep in the turbid havoc
     distorted by patterns of rain
               and side-blown rivulets

a thing moves massive
          amid black coiling clouds
     outlined only in part
               by flashes of light

                         and thunder.
 

          And there it is
               the Monster
     outlined in grainy gritty
                    shades of gray.

          The doctor points
               talks of radiation
     chemo and surgeries…
                    I blink back fears

          and struggle with all
               my might to see
     beyond reverberating peals
                    of terror and loss.

Of course, the storm is a metaphor for the emotional chaos stirred up by the diagnosis of cancer in a loved one. The outline in the storm adumbrated by flashes of light is metaphor for the image of the mass itself produced by scans—which basically use various kinds of flashes of light to produce the image, from X-rays to electromagnetism.

It’s been about two and a half years now since sitting in doctor’s offices with my wife going over scans and asking questions between long, strained attempts to breathe. And although my wife has been in remission for a couple of years at this point, I think it’s safe to say that I’m still traumatized by the experience of it all, hence this little bit of psychotherapeutic personal poetic trauma processing.

Event Horizon

I am hoping to get back into the swing of things when it comes to producing poems. For now I’m setting myself the goal of writing and posting one poem each month. If I can manage this, then I’ll look at stepping it up from there.

As I try to return to the habit of writing, I find that most of what occupies my creative thoughts is the experience of dealing with my wife’s cancer. As of now, she’s been in remission for two years—a miracle in itself to be sure. But no matter how long we both may live, I’ll never forget the experience of being caught within the gravity well of that singular tumor and forcing ourselves to go about each day within its event horizon.

Event Horizon

Despite the aching crawl of time,
         I wake each day
               from fitful sleep,
      stumble to the car,
                  and drive to work.

      Despite the crushing pressure
            of uncertainty,
   we take our son to preschool,
         to the park to play,
               and ready him for bed.

Despite the all-consuming darkness
   that haunts every thought,
         we buy groceries,
               prepare our meals,
      and pay the bills.

The diagnosis was unexpected—
            I suppose it always is.
      In but a moment, all
   forward momentum was lost
         and we found ourselves
            locked in the fathomless
                     grip of a tumor.

         And yet despite
               the overwhelming gravity,
      we continue on and
                  go about our lives
            just inside the event horizon
                        of oblivion.

Just call it cancer

If there is one thing cancer is good at, it’s sucking up the energy and brain space for creative pursuits. Over the past several months I’ve tried again and again to start or work on poems focused on this or that subject, but in the end I’m just not feeling it. Cancer, however, is another story entirely.

Just call it cancer

It’s okay, really. Just say it,
                                       “Cancer.”

You won’t be saying something
we don’t already know. In fact,
it could even be cathartic
to hear that quaver in your voice
as the dreaded word tears up
from clear, clean lungs through
unobstructed airways past vibrant
vocal chords, an articulate tongue
and pink, nonmalignant gums
that bite bitterly down at the end,
                                       “Cancer.”

It won’t add weight to the struggle
to hear it said plainly, clearly.
After stainless steel biopsies;
penetrating scans; reports and cross-
sections reviewed with surgeons
and oncologists; second opinions
sought from beyond the horizon;
radiation burns seared deep
into the soul; gut-wrenching poisons;
time lost to anesthesia; and the slow,
steady crawl of recovery—we won’t
buckle at the knees and collapse
utterly to hear that singular word,
                                       “Cancer.”

It won’t summon some ancient
terror from the void—It’s already
here, lurking in warm red darkness,
bending all of life toward the hazy
event horizon of uncertainty.
It changes nothing to call it
“the big C” or even “the struggle.”
Just go ahead and call this black
hole of mutinous selfhood by name,
                                       “Cancer.”

This is largely inspired by the tendency of people to go well out of their way to avoid saying the word “cancer” even as they ask about or otherwise discuss it. While I get that this represents an attempt to be sensitive, it can also be frustrating because it’s hard not to feel like you’re being coddled.

Riptide

A lot has happened over the past few weeks. But, first the poem, then the news.

Riptide

I used to bodysurf.
It was years ago, as a child.

I lived not far from white sands
    and long curling waves,
from sailboats and oil tankers
that loomed like quiet phantoms
at the liquid edge of the world.

Wearing dark blue trunks,
I would wade in through broken
waves until the brine lapped
softly against my chin.
As whitewater neared, the sea
would drop just low enough that
I could push off and join
the tumult, turned briefly
into a crude, knobby surfboard
    sliding amid the swell
until at last my trunks scooped up
    a little sand, and I found
myself beached between worlds.

Once, while waiting for just
the right wave, I bent my knees
and dropped below one not quite
    big enough, pushed up
to the higher water behind it, and
came down on absolutely nothing.

The sand was gone.

I extended one leg, toes spread
down to find it, but all I could feel
was grit rushing around my foot,
    my ankle, and shin.

There was a moment of uncertainty,
as if the wily sea were merely playing
a practical joke, then on instinct
I began to swim toward shore
where I could once again find sand
to stand on. But, I went the wrong way,
swimming forward, my body slid
back toward those distant ships, limbs
useless as seaweed on the wake.

The joke was over. Fear flashed
electric through my limbs. I sprinted,
kicking and stroking with all my might,
eyes wild and white, face pale, arms
and legs weakening until at last they
turned flaccid and ghostly as jellyfish.

Strength spent, I gasped for air
as my chin dipped into that salty,
half-lit world. And with that air
I choked and gulped at the sea.

Somewhere in the watery depths
of my soul, I began to accept this fate.
I began to accept that I now would join
and merge with the great abyss forever,
that maybe I would find my father there
in the cold blue depths, that the simple
    joys of breath were at an end.

Then, suddenly, a bright orange buoy
splashed near and I heard a voice
howl, “Grab the buoy! Grab the buoy!”

It was just out of reach, and I was still
being pulled out to sea. But I saw him,
a muscular man in glaring orange
    trunks waste deep with fear
in his eyes—he saw me, a lifeguard.
And seeing I could not reach the buoy,
with one great snap of his wrist,
whipped it out of the water back
to his hands. Like a quarterback
from heaven, he heaved back
and hurled that orange buoy as if
he meant to land it beyond the horizon.

It landed just past my head, and with
one feeble hand, I grabbed hold.
My body lifted horizontal as the rope
pulled taught, and for the first time
I could feel current rushing past
every inch of skin. My other feeble
hand took hold and the man full
of muscles reeled me in against
that all consuming tide until I flapped
and flopped onto dry sand, crying.

    I remember looking back
on that great ocean, waves weaving
docile patterns onto the shore,
        shaking,
heart hollow with fear and dread.

When the doctor came in, he asked
me to remove my sunglasses. His
face was granite. He said he wanted
to see my eyes. In that moment,
I came down on nothing and began
            to tread uncertainty.

I removed my glasses, and he began
to tell me about your procedure, tilting
his head forward as he tracked my eyes.
I toed for sand as he talked of polyps
safely removed from your watery
depths. Then he took a breath, almost
imperceptible, and said in dry, measured
tones as grit rushed past my leg,

                       “I found a malignancy.”

So, yes. We discovered a month ago that my wife has rectal cancer. The tumor itself has since been staged at T4n0, which means it’s a very large tumor that has not yet spread to the lymph nodes, though nearby lymph nodes are inflamed. The medical oncologist initially set the staging at 3b, which indicates the cancer has spread to the lymph nodes, but the staging may be lowered to 3a or possibly even 2, though the size of the tumor itself along with the inflamed lymph nodes makes stage 2 unlikely.

This poem came about as I tried to tell my sister what it was like for me to learn about the tumor, using this childhood experience as metaphor for the more recent experience. Perhaps the doctors involved, including the surgeon overseeing the case, could be the lifeguards and the treatment protocol the buoy. But, for the most part, I feel like I’ve already been swept out to sea. We do try to stay positive, though. That’s important.